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Our art installation is a reflection on the experiences of individuals with locked-in syndrome and their disconnection from the external world. It embodies a clear juxtaposition: the tangible presence in a physical space contrasted with a profound detachment from reality. This central theme shapes the essence of our exhibit. We want to put emphasis on the appreciation of human connection and uninhibited communication.
We are creating an immersive experience reflecting on what it’s like to be in this terrifying situation. This is done by speaking to people who’ve recovered from locked-in syndrome. Their stories are a big part of what makes this installation impactful. The piece centers around a converging pathway bordered by water, leading to a waterfall cascading over an impenetrable barrier. This impassable barricade blocks direct access to the visuals playing behind it. The enclosed pathway edged by shallow water evokes a feeling of being restricted and funneled involuntarily. One is compelled towards the barricade but cannot progress further. The waterfall interferes with the visual, obstructing it, disconnecting you by troubling your vision. For controlling the flow rate of the waterfall, we are using actual brain wave data (EEG), recorded from recovered locked in patients. This opaque barrier represents how this group is prevented from fully expressing themselves or connecting with their surroundings.
The interview intends to evoke emotions. That’s why the interview was set up using carefully chosen questions and wording beforehand.
In order to tell a story about: frustration, anger, loneliness, hopefulness, helplessness, appreciation and desperation, a set of questions was made that was used as a starting point during the interview.
The questions were categorized in three factors: body experience, communication and reflection on the experience.
An EEG was used, this is a device that measures the electrical activity of the brain. Therefore the intention was to measure the emotional reaction of a recovered lockedin patient when they think back to certain moments regarding that period.
This strong connection between brain activity and emotion refers to the experience of a locked-in patient. Since the brain was one of the few organs that worked during the locked-in period, and the struggle with experiencing emotions without the ability to express them.
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